Day 2 :
- Accepted Presentations
Session Introduction
Margaret Glenney
The Sensory Centre, USA
Title: Auditory training, sound therapy and developmental delays
Biography:
Peggy has been an audiologist for more than 30 years. She is the owner of The Sensory Center in Roanoke, VA where she uses sound, auditory and vestibular therapy combining the work of Masgutova, Pilker, RMTi, Vojta and others to provide customized individual therapy and interventions for infants and children exhibiting developmental delays. She has published in Audiology Today, The Journal of the American Academy of Audiology, and Hearing, Balance and Communication. Peggy also has a grandson with developmental delays
Abstract:
Auditory training programs have been around for more than five decades, being used with individuals with peripheral hearing losses and well as central auditory processing disorders.
This lecture will review many of the auditory training and sound therapy programs both from the past and in current use. The will include, but not be limited to Berard AIT, Tomatis, the Buffalo Model, Integrated Listening Systems (iLs) and Forbrain, Rhythmic movement training, and primary reflex integration. Information regarding criteria for recommended use, cost and availability will be addressed.
The work of Tony Wigram with vibro-acoustical therapy along with Kathy Johnson and the work of Vojta and Musgatova will also be discussed along with other vestibular neuro-motor programs in combination with auditory training
Laura Lyman Debenham
Great Basin College, USA
Title: Effective interaction with children with high functioning Autism: From diagnosis to the classroom
Biography:
Laura Lyman Debenham, L.M.S.W. is the coordinator/instructor for the UNR/GBC 3 + 1 Social Work Program. She is the past owner of TBA Think Before Acting where she taught Domestic Violence/Anger Management classes to mostly court-ordered clients in Elko Nevada and surrounding counties. Laura has worked in a variety of settings as a social worker and educator. She has been a school social worker, therapist and family advocate, specializing in autism spectrum disorder. Laura is the mother of a child on the autism spectrum. She is passionate about educating and empowering parents and professionals who deal with autism daily. Laura gives workshops to educators and other professionals on a variety of topics including autism spectrum disorder, marriage counselling, domestic violence and substance abuse.
Abstract:
This paper reviews the literature examining benefits of early diagnosis in children with Asperger’s Syndrome (AS) and adult interaction from birth through elementary school years. The review highlights the disparity between children who go without a diagnosis and those who are diagnosed early and the efforts of parents, teachers and helping professionals to effectively interact and teach these children. Studies show that children with AS are best served by parents and professionals through early diagnosis. If adults understand symptoms of AS they will be better equipped to aid children who fail to be diagnosed.
Rebecca McKenzie
The University of Plymouth, UK
Title: A randomised, controlled feasibility study comparing the SAFE intervention with support as usual for families of children with autism
Biography:
Rebecca McKenzie is a Developmental Psychologist and Associate Professor of Early Childhood Studies at The University of Plymouth in the UK. Professor Rudi Dallos is an Emeritus Professor of Clinical Psychology at The University of Plymouth and a family therapist.
Abstract:
Background: Alongside symptoms of autism and maladaptive behaviour, children with autism and their families also report mental health problems. SAFE is a new family oriented intervention drawing upon attachment theory, systemic practice, multi-family therapy and preferences of people with autism.
Aim: A randomised controlled feasibility trial of SAFE was conducted to prepare for a definitive national UK trial to evaluate its effectiveness in promoting positive family change.
Objectives:
Methods: Thirty-four families were recruited (randomised 2:1) to receive either (i) the intervention plus support as usual (SAFE+SUE) or (ii) support as usual (SUE). SAFE provided five 3-hour therapy sessions. The primary outcome measure was the Systemic CORE 15 (SCORE-15) assessing perception of family functioning. Secondary and process measures assessed therapists’ adherence to the intervention and families’ experience of the study materials, recruitment, intervention, perceived changes in relationships, wellbeing and coping.
Results: Data was provided at baseline by 34 families (122 individuals), at 24-weeks by 30 families ( 97 individuals). Primary outcome data were available at both time points, for every dimension for 88% Primary Caregivers. There was a marked reduction in negative family function for the SAFE+SUE group only resulting in a mean difference of >3 points on the SCORE 15. Secondary measures and process evaluation showed families receiving SAFE experienced positive change in family dynamics, psychological wellbeing and confidence in managing difficult behaviours. Therapists reported confidence in delivery of SAFE.
Conclusions: Families found the trial acceptable and the intervention helpful. Marked reductions in negative family function and increases in psychological wellbeing and reciprocal understanding were evidenced from families receiving SAFE. This study provides potential proof of efficacy for SAFE and will progress to a national UK trial prior to implementation.
Biography:
Esther Jung is a rising high school senior attending from Southern California. Her motivation to support those with special needs, especially autism, has led her to dedicate time outside of school to autism-related activities. As the President of Autism Speaks student organization at her school, she aims to educate high school students and other people in her community about autism.
Abstract:
Autism spectrum disorder, or ASD, is a neurodevelopmental disorder found in roughly 1 in 68 children. It is characterized by socio-communicative impairment and repetitive behaviors that interfere with an individual’s ability to function. Although it can be found within any racial and ethnic group, it is much less commonly diagnosed among females than males. Further insight shows that the diagnostic criteria for females across multiple diagnostic tools requires more severe autistic symptoms and greater cognitive and behavioral issues. This paper investigates the cause behind the gender gap between males and females diagnosed with autism. Through multiple studies and articles, it was discovered that a specific phenotype exists for most autistic females, the phenotype being the ability to mask symptoms and mimic social behaviors/cues of peers without autism. These traits commonly found in females causes autism to go unnoticed or misdiagnosed leading to detrimental mental health effects on girls and women. This founding called for more attentive observations from researchers, as well as revisions to current diagnostic tools for a clearly defined symptomology of autism in females.
The articles used in this paper are from Journal of Autism and Developmental Disorders, Autism, Social Work in Mental Health, Research in Autism Spectrum Disorders, and Research in Developmental Disabilities, all of which specialize in publishing works on disorders, especially autism. This research is extremely important to prevent late diagnosis of autism in females. There exists a profound need for advanced research to close the gender gap in this growing field. It is not uncommon to find girls who have been misdiagnosed for depression until they are re-diagnosed for autism at the age of seventeen. To prevent future generations of females secretly suffering from autism to go undiagnosed, it is pivotal to properly educate and train professionals, such as social workers, medical practitioners, and teachers to identify the appropriate symptoms in girls. Providing updated diagnostic tools is the first step towards the right direction regarding this critical issue.
Biography:
Britta Westerberg is a licensed clinical psychologist and PhD student at Orebro University, Sweden. She is clinically active at Orebro adult habilitation center, a team specialized in Autism, and involved in the research group of professor Susanne Bejerot whom has published extensively in the field of ASD.
Abstract:
The number of patients diagnosed with autism spectrum disorder (ASD) is increasing rapidly and psychiatric comorbidity is common. The health care system is failing in meeting their needs, contributing to low levels of general life quality, increased psychiatric illness and in the long run increased medical consumtion. The field is in great need of new and accessible treatment methods targeting general life quality among these patients. Internet based treatment options is rapidly making its way into health care, and much research supports the effectiveness and applicability of internet based methods. Even though young adults with ASD are a highly digitized group, some spending most of the day online, there are few internet based treatment options avaliable. The aim of this study was to develop, test and evaluate the utility and effectiveness of an internet based treatment method targeting life quality and psychiatric symtoms among Swedish adults with ASD. The method consists of 18 weekly distributed text-based sections including psychoeducation, behavioral and cognitive change strategies based on cognitive behavioral therapy, social skills training and internet based group discussions on subjects such as acceptance of difficulties, shared experiences and managing strategies. The method includes home exercises and weekly written therapist feedback. During spring 2019, 84 adults with ASD were recruited and randomized into intervention or control condition. 42 patients underwent the 18 week treatment, delivered through a swedish national platform for online health care. 31 patients completed the therapy and preliminary results of patient satisfaction are promising. The primary effects on life quality are currently (autumn 2019) being analyzed. If the intervention shows effect it would increase access to psychological treatment for a large group of patients with major difficulties in several areas of life.
Biography:
As a very fluent bilingual herself, May Wang is an emerging high school student based in Beijing, China. She has specific interests on the interaction of language development and autism. Particularly, she has read widely on how multilingualism and autism develop in a psychological perspective. As a future research interest, she is motivated to support those with autism through introducing the potential advantage of learning additional languages. As an active volunteer in her school’s campaigns for mental health education, she has constantly taken action to raise awareness of and provide solutions for adolescent mental health issues within and outside her school.
Abstract:
The presentation takes a novel psycholinguistic approach looking into autism, focusing on the interaction between bilingualism and autism research. It provides a combination of different dimensions, from social to cognitive and perceptual, to explain this relationship. In light of the complexity and variety of symptoms characterised in individuals with autism, this presentation aims to broadly categorise them into three areas - namely social interaction deficits, cognitive deficits, and perceptual irregularities – in order to pinpoint the specific explanations for the abnormalities. In particular, theoretical underpinnings of Theory of Mind (Baron-Cohen, 1989), Executive Functions (Poljac et al., 2010) and Central Coherence (Happe, 1996) will be compared and discussed in a heterogenous fashion. Multilingualism and additional language development have also attracted attention on the three areas mentioned above. Cognitively, multilingualism was argued to bring upon advantages on domain-general cognitive functions ranging from working memory to inhibition and task-switching (Bialystok, 2009). Theory of Mind and Central Coherence were also associated to how language switches interact with metacognitive awareness and semantics/pragmatics in linguistics. This presentation therefore argues that the theoretical overlap in autism and bilingualism on the Executive Functions domain could be critical in advancing the understanding of both populations in the cognitive perspective. More importantly, this argument posits that the adverse effect from apparent executive dysfunction along with other neurodevelopmental symptoms could potentially be reversed by the acquisition of new languages. Additional language learning could serve as effective practice strategies to compensate for the developmental deficits on social, cognitive and perceptual aspects. The focus of this presentation therefore critically evaluates research that relates the two psychological concepts, aiming to unleash the potential of a rather new area for autism treatment. Further, in light of the lack of research that links the two areas in the academia, this presentation also targets to encourage researchers to explore this multi-beneficial, multidimensional technique to autism intervention.
Javier Pita de la Vega Garcia
Consorci Sanitari del Maresme, Spain
Title: Role of nursing mental health specialist in Catalonia (Spain) in the care of ASD
Biography:
Javier Pita de la Vega García has studied Nursing at the University of Valencia (2010-2014). He completed the mental health specialty at Consorci Sanitari del Maresme (2015-2017). He currently works in a child mental health center and partial income unit in Mataró (Spain), where he makes individual visits and psychotherapy groups.
Abstract:
Specialty of Mental Health Nursing are post-university studies in which specialized training is acquired for two years. To access this training, you must make an opposition and access a place through this exam (art.21 law 44/2003). This mental health specialty does not exist in other European countries and its functions are unknown. To describe the functions that mental health nurses can carry out in patients diagnosed with ASD, a bibliographic review of the needs of patients and the legal framework existing in Spain has been carried out. The functions performed as a specialist nurse are:
- Obtaining the ADOS-2 / ADI-R certificate.
- Psychoeducational groups for parents of children diagnosed with ASD.
- Legotherapy. Multidisciplinary groups.
- Evaluation of mentalism and guidelines related to their difficulties.
- Guidelines for emotional management and frustration tolerance.
- Assessment of tolerance to drug treatment and improvement of medication adherence.
- Visits at the home of the child with ASD and address difficulties from there.
- Work difficulties in eating habits and sensory difficulties related to food.
The increase in patients diagnosed with ASD in the last three years is 20.5% (Catalonia, Spain) with an average of 9 visits per year. The functions performed by skilled mental health nurses allow early diagnosis of children and improve: children's adaptation in the school environment and help parents understand the difficulties..
Margaret Glenney
The Sensory Centre, USA
Title: The language of hearing: auditory and vestibular disorders and their rehabilitation in children on the spectrum
Biography:
Peggy has been an audiologist for more than 30 years and presently has a private practice focusing on the early intervention and remediation of children exhibiting developmental delays. She has published articles most recently in Audiology Today and Hearing Balance and Communication. Peggy has done hundreds of hours of research regarding hearing/vestibular and other processing issues spurned on my her grandson, who has significant developmental delays.
Abstract:
There are both symptomatic and electrophysiological indices that support abnormal auditory and vestibular processing in children with a host of educational and psychological labels. In addition, there is a plethora of historical evidence of retained primitive reflexes in children with educational and reading problems. Recently, the work of McPhillips , Blythe and Goddard, and Moller , and classically the work of Hallowell Davis, taken in combination have suggested: 1. hat the phylogenetically older and sometimes referred to as the non-classical or “lower” auditory pathways are operative in children but not in adults, 2. That this ‘lower” pathway can be modulated by somatosensory input, 3. That many children with labels of all sorts harbor retained primitive reflexes that are modulated by the brainstem, and 4. That physical movement activities have been shown to “calm down” and integrated these primitive reflexes with concomitant observed amelioration of symptoms associated with autism, ADD, ADHD and other similar educational and psychological labels
Julia Charkey-Papp
Consultant Psychiatrist – Perth Clinic Medical Suites, Australia
Title: Transition to adulthood in young people with autism – An Australian clinician’s perspective
Biography:
Dr Charkey-Papp has been living and working in Perth, Western Australia, since 1991. She completed her basic medical training in Cluj-Napoca, Romania. She trained as a Psychiatrist in Australia and worked across many settings as a General Adult, Adolescent and Developmental Psychiatrist. In 2001, she completed a theoretical dissertation on the subject of adolescent suicide, entitled ‘The Death of the Self’. She has been working in full-time private practice since 2004. Between 2005-2007, then from 2012 till 2015, Dr Charkey-Papp was the Medical Director of the Perth Clinic Adolescent and Young Adult Program, a service she had helped develop, arching over outpatient and inpatient settings. Thereafter, she has been focusing mostly on the assessment and management of youth and adults ‘on the spectrum’ of autism. Her current great interest lies in the detection of ASD traits in females, in the broader phenotype and in the concept of a ‘latent’ diagnosis. To date, she has assessed, diagnosed and treated over a thousand individuals on the spectrum of ASD.
Abstract:
Damian Riviez
Abu Dhabi School of Management, UAE
Title: A model of comprehensive intervention in treating Autism Spectrum Disorders (ASD)
Biography:
Professor Damian Riviez, Ph.D., is the Dean of the Abu Dhabi School of Management in the UAE. His research interests include innovative platforms of human learning and development in business, communities and education. Damian has a passion for studying new applications for learning to address diversified learning challenges in human development. Professor Riviez holds a Doctorate in Educational Organization, Administration and Policy, a Master’s of Science in Special Education, and a Graduate Certificate in Autistic Spectrum Disorder, all from the USA. Dr. Riviez has a child with additional learning needs.
Abstract:
Autism Spectrum Disorders (ASD) is a complex neurodevelopment and immunological condition encompassing various biological aspects of the human being. These aspects include challenges to cognition, behavior, sensory processing, and communication. This is a global issue, as ASDs’ become increasingly prevalent, and societies struggle with general educational awareness and effective treatment of such disorders. The healthcare and educational community finds addressing the needs of families and individuals with ASD extremely challenging. There is a lack of genuine consensus and; general understanding in creating new thinking and comprehensive approaches to treat ASD. Hence, parents are left on their own with a fragmented road map, a puzzle, to solve in creating a better life for their children. Research has shown that efficacy of treatment programs for individuals with ASD reduces significantly when administered in a singular manner. Fragmented therapeutic approaches toward ASD have a tendency to have minimal effects due to a lack of integration in assessment and programming. The model aims at providing a genuinely comprehensive, systemic and integrative approach to treatment that encompasses several aspects of human development. The attributes of the model will be presented and discussed.
Xandria Louw
Counselling Psychologist in Private Practice, South Africa
Title: Fairytale Facts – On uplifting communities creatively by raising mental health awareness and providing support.
Biography:
Xandria Louw holds a MA(Counselling Psychology) degree from the University of Stellenbosch. She is a registered psychotherapist in private practice and has a special interest in working with children and their families, assisting in the process of unfolding their fullest potential. In depth individual psychotherapy in treating emotional difficulties forms the main focus of her practice. Other areas of interest includes assessment of barriers to learning, parental guidance and public presentations. She is dedicated to and passionate about community service. She leads the Youth Committee of Raising Hope SA, a Non-Profit Organisation which aims to promote inclusion and provide opportunities, counselling care and education for families and individuals impacted by disability. She also works closely alongside the multidisciplinary team of The Goldilocks and the Bear Foundation, offering service in the form of assessment and parental guidance.
Abstract:
This presentation reports on the work of the Goldilocks and The Bear Foundation as the first initiative in South Africa to offer non-profit ADHD screening and early intervention in underprivileged communities. The Foundation was founded by psychiatrist Renata Schoeman (Goldilocks) and entrepreneur/athlete Nic de Beer (The Bear) and aims to remove mental health barriers to education through screening, early referral, diagnosis and treatment – thereby improving the quality of life of the children they serve. Although mental health clinics exist in the public sector, children with ADHD often never reach this point of diagnosis and treatment due to a lack of awareness and knowledge in their communities. They are never screened for ADHD, and may be labelled as naughty, or “stupid”, or just silently fall out of the educational system and only come to our attention when absorbed in the criminal justice system. These children never have the opportunity to flourish. The Foundation focuses on raising awareness of ADHD, increasing the knowledge of and providing training to parents, teachers, and healthcare workers, providing screening and early identification of children with ADHD at schools, referring them for timely intervention and treatment, and capturing statistics on the prevalence and management of ADHD in South African children. Their model is one that can successfully be implemented in underresourced communities – through collaboration with volunteer healthcare professionals, as well as public sector stakeholders.
Enver Çesko
Kosovo Association for Psychotherapy, Kosovo
Title: New perspectives of ASD - Integrative psychodynamic approach
Biography:
Prof. Mr. Sci. Enver Cesko, Licensed Clinical Psychologist and certified body psychotherapist and positive transcultural psychotherapist, international trainer and supervisor. President and founder of the Kosovo Association for Psychotherapy. He is a Board Member of European Association for Psychotherapy (EAP); a Board Member of World Association of Positive Psychotherapy (WAPP); a Board Member of World Council of Psychotherapy (ECP); a Council Member of the European Association for Body Psychotherapy (EABP); and a holder of the ECP, WCP and is also an accredited therapist from Mind-Body Medicine, Washington DC. He used to be a former university lecturer, currently he is working in his own private practice in Pristina, Kosovo, and conducting international training workshops on positive and body psychotherapy, as well as coaching, stress management, leadership and team building. Since 1999 he presented his workshops and lectures, in more than 20 World and European Congresses for psychotherapy. He published more than 150 different kind articles in professional and weekly journals.
Abstract:
This presentation is based on new methodologies that are recently present in different psychodynamic approaches who are multidimensionally combining in one, offering integrative view in understanding and serving treatment for autism spectrum disorders(ASD).
Today many definitions (Abrahams & Geschwind, 2008; Bailey et al., 1995; Baron-Cohen et al., 2009; O’Roak & State, 2008; Veenstra- Vanderweele & Cook, 2004, Cullinane, 2016,), show that Autism Spectrum Disorders(ASD) are neurodevelopmental disorder which are characterized by symptoms manifested in mostly four areas; communication skills, social interaction skills, different types of behavioral skills, and general cognitive skills. Because of that, many clinical and etiological symptoms are heterogenous, that’s why diagnostic symptoms variate from many different components.
Children with ASD have unique symptoms, they need to receive treatment that meets their specific needs. In earlier decades, where treatment focus was on cognitive and behavioral changes. In now days, approaches as play therapy, behavioral therapy, applied behavioral analysis(ABA), relationship development intervention(RDI), speech therapy(Logotherapy), and occupational therapy, are competitive to each other by trying to have primate in social media environment. One approach may play incredible efforts to show dominant position among others.
In recent days new developments of different modalities in psychotherapy, offers new approaches that are not focusing only in “old” symptoms and manifestations, but also having a new developments in neuroscience and medical technology. These results are emphasizing on human personality as a whole structure of capacities not only to know but also and to love. These two basic capacities are integrate in one, where as a whole will develop an integrative psychotherapy approach in treatment of ASD.
The focus in this presentation will be on new facts that neuroscience, medical technology and psychotherapy approaches offer new dimensions in treatment of ASD by using the variety of methods and techniques how children will feel in present time his own personality and being accepting in the social environment.
Particularly, in this presentation will be used two main psychodynamic and humanistic approaches; body-psychotherapy and positive psychotherapy. In these two approaches the symptoms and manifestations are not focal emphasizes, but a person, as human being with his/her capacities to do something, and not necessary to change something.
Key words: autism spectrum disorder, neuroscience, medical technology, psychotherapy approach, integrative, psychodynamic, humanistic, body-psychotherapy, positive psychotherapy.
Mary Klinkradt
Raising Hope South Africa, South Africa
Title: Inside out and outside in: Two perspectives on a specific disability driven community program
Biography:
Mary Klinkradt has a MSocSci degree from Rhodes University, Grahamstown, South Africa. She is a mother of 3 children, 2 of whom have disabilities, including autism. She started a Special Needs ministry through Durbanville Baptist Church in 2013 which caters for the inclusion of children and adults with various disabilities. She continues to oversee this programme. In 2016 she took on the role of CEO of Raising Hope South Africa, a Non-Profit Organisation which aims to promote inclusion and provide opportunities, counselling care and education for families and individuals impacted by disability
Abstract:
This paper examines a community support program run in Cape Town, South Africa. The programme known as the UP Family Days was started by a parent of a child with multiple disabilities, including autism, for families impacted by disabilities. The implications, effects and impact of the program will be considered from two perspectives: that of the parents (families) who participate in the program, and that of the volunteers who work with the disabled children and their parents, but who are not otherwise themselves impacted in any way (personally or within the family unit) by autism. The importance of community programmes, community awareness and the need for connections between families, support groups and the greater community will also be considered within the context of this particular programme. The need to strengthen and empower families who are impacted by autism and other disabilities within the community is explored through these two opposing perspectives.
Rosalie Elizabeth Seymour
Retired Speech and Language Therapist and Audiologist, UK
Title: Can evidence inform intervention? Reporting on research into auditory processing disorders in children with ASD – considering whether research into auditory integration training and filtered sound training has relevance
Biography:
As a former Speech and Language Therapist and Audiologist, Rosalie spent most of her working career in the field of ASD. She has travelled to various countries to study many approaches that parents reported to be effective, compiling a desk directory of this information entitled ‘Autism, Options Galore’. She developed a Whole-Person approach to intervention named Neuro-Cognitive Mobilisation. She is an international trainer of practitioners of the Berard Method of AIT, having developed several devices for AIT including the computer-based and tablet-based systems called Filtered Sound Training. She has presented on CAPD, AIT and Autism at many conferences in the UK, Ireland, and South Africa.
Abstract:
Since the 1980’s there has been an acceleration of interest by neuroscientists in the Auditory Problems of Children with ASD. The focus of study has largely shifted from attempting a differential diagnosis between the symptoms of ASD and of Auditory Processing Disorder (APD), towards an improved understanding of APD and its impact on the lives and wellness of people with this disorder. A large amount of research data has accumulated, and sheds light on the manner in which auditory brain potentials of children with ASD differ from those of the neurotypical learner. This presentation will offer a summarised overview of this data, and will discuss how this body of evidence is informing and directing our intervention strategies, both clinical and educational. The presenter will further summarise the most recently published research papers on the impact of Auditory Integration Training (AIT)– the Berard Method (also named Filtered Sound Training - FST), as well as my own two unpublished research projects. The statistical significance or otherwise of this intervention on the auditory problems of children with ASD will be discussed, as well as the unexpected discoveries. Many of these have brought new insights into the breadth of the impact of auditory processing problems on the social, emotional, learning, language and well-being of children with ASD.
- Accepted Presentations
Session Introduction
Asia Dimitrova
Author, UK
Title: Autism in the eye of the beholder. A Hedgehog or a Cactus?
Biography:
I was born as a high functioning autistic in a communist country within a family and society ignorant to the Spectrum. I use my special interest in people as a super-power to shift the paradigm and integrate radically new concepts and insights about the Autistic world into the not-autistic frame of reference At present, I am a certified SEN tutor, an author, consultant and inspirational speaker on parenting and Autism. All my years of experience, combined with being autistic myself, give me a point of view and a set of perceptions very different from the ordinary which makes my input a valuable insight, and I am often working with complex cases of adaptability.
Abstract:
While there are many assessments, support systems and practices in place established over the years for autistic children they have been focused on the child exclusively. An admirable campaign on public education has been launched to help for some adjustments and exceptions to be made at schools and promote the settling of a culture of more acceptance. Still, it does not require people to take personal responsibility which still lies with the autistic person. I propose that society’s mindset need to change and urgently. Parents need fresh eyes, and a new perspective that can add another piece of the impossible puzzle they are solving every day but solutions come naturally only when the questions are clear. An autism therapy is only possible if it’s applied to the collective. We need to understand that autism is not cases of isolated, unfortunate incidents but a collective phenomenon. The change starts from parents who are open to learn how to manage their own personal space and emotional balance introducing some unconventional concepts such as:
- Emotional Skin Deficiency (ESD) - challenges and benefits
- Autistic differences in perceptions - physical, visual, sound, time, etc.
- Emotional Hygiene for everyone
- Multi-Level Communication
- Energy differences and effective management
- Nutritional adjustments in support of the internal autistic structure.
It’s the immediate circle of family members and teachers that have to learn new ways of thinking, feeling and responding. We all have to share the responsibility and learn to control our minds and emotions first, before imposing it to others.
Anuttoma Sen
Leeds Beckett University, UK
Title: An insight into educational transitions of children with Autism Spectrum Disorder (ASD): Parents perspective
Biography:
Anuttoma is in her second year of her PhD course from Leeds Beckett University, Leeds, UK. She has participated in Post Graduate Research Society Conference in Leeds with an oral presentation on Autism in 2018. She had been a teacher in an inclusive school and pursued her Advanced Diploma in Special Educational Needs from Leeds Beckett University as well.
Abstract:
ASD is a complex developmental disorder that can cause problems with thinking, feeling, language and the ability to relate to others. Transitions are the continuity of experiences that children have between periods and between spheres of their lives. Key transitions can be particularly stressful for children having ASD and their families. Due to their social communication difficulties with respect to barriers, children with ASD find educational transitions particularly challenging. A communication barrier is anything that prevents one from receiving and understanding the messages others use to convey their information, ideas and thoughts. My research is based on parental experiences during educational transitions. There is no specific research done on the experiences of parents during the educational transitions of their children with ASD (nursery to primary years) in India till date. These early years are very crucial for the child and also the parents in the educational process of the child. All researches being done are mostly related to the medical science aspects of autism and some on the general stress levels of the parents. The findings would encourage practitioners with ideas for better practice incorporating the views of parents and also contributing to academic literature on this topic. It is intended that the outcomes of my research will benefit the local community including the children, parents, educators and support services aiming to address the gap in literature and would offer a detailed and timely exploration of parental experiences and perspectives around their childrens’ transitions from nursery to primary schools in India.
Kanchana S. Boseroy
Tucson Medical Center, USA
Title: Screening for Autism spectrum disorder - The need to improve early identification and diagnosis in Santa Cruz, Bolivia
Biography:
Dr. Kanchana Boseroy is a developmental-behavioral pediatric specialist with board certification from the American Board of Pediatrics Developmental-Behavioral and Neurodevelopmental Disabilities. Currently at the Pediatric Developmental-Behavioral clinic in TMC HealthCare in Tucson,AZ. She graduated from Medical College, North Bengal University, specializes in developmental-behavioral pediatrics and neurodevelopmental disabilities, and has been practicing for 34 years.
Abstract:
The term autism is in use since 1911. In the 1940s, researchers in the United States began to use “autism” to describe children with emotional or social problems. One century has passed and countries like Bolivia lack formal screening for the early identification and diagnosis of children with Autisms Spectrum Disorder (ASD). A 2012 census revealed 31.34% of Bolivian's population is 0-14 years of age and Santa Cruz as Bolivia’s largest city with an urban population of 1,441,406 people. International data reveal Bolivia ranks near the bottom among Latin American countries on health and education. The prevalence referred by the CDC is that approximately 1 in 59 children is diagnosed with ASD. Researching available peer-reviewed literature, no prevalence rate of ASD in Bolivia could be obtained. The material available was anecdotal information about collaboration with non-governmental organization building capacity to serve people with the diagnosis of ASD in other cities in Bolivia. As an initial step to improve identification and diagnosis of ASD children in Bolivia, a survey was developed to inquire in the knowledge and use of screening tools among pediatricians in Santa Cruz, Bolivia. The goal is to start the use of screening tools in a formal uniform manner to improve the identification and diagnosis of ASD in children. Pediatricians from public hospitals and private practice are included in the sample and the study relates to how many patients they see and the years of practice, they have.
Biography:
Peggy has been an audiologist for more than 30 years. She is the owner of The Sensory Center in Roanoke, VA where she uses sound, auditory and vestibular therapy combining the work of Masgutova, Pilker, RMTi, Vojta and others to provide customized individual therapy and interventions for infants and children exhibiting developmental delays. She has published in Audiology Today, The Journal of the American Academy of Audiology, and Hearing, Balance and Communication. Peggy also has a grandson with developmental delays
Abstract:
Normal hearing sensitivity and processing is essential for the development of speech and language in the young child. Presently, in the United States, there are approximately 1 in 6 children with a developmental delay or learning disability. Early intervention is key and crucial in the overall outcome of any child with any hearing problem, which is why hearing “screenings’ are usually done on all infants before they leave the hospital.
Our “hearing” and “vestibular” systems are anatomically and intimately tied together, and several of the primitive reflexes that progress to inhibition so that the postural reflexes can develop emanate from these systems. Primitive reflex retention or lack of inhibition has been long linked to developmental and educational issues. This lecture will focus on primitive reflexes, and some of the red flags in development that can be easily assessed that may indicate a delay or difficulty in neuro-development of the newborn. They include, but are not limited to: abnormal or absent crawling stage, inability to localize sound, lack of babbling, and absence of anticipatory motor response to being picked up by the caregiver. Early and easy identification of children with developmental delays is the first step toward limiting difficulties and closing the gap.
Biography:
Hideki Kozima completed his Ph.D in computer science from the University of Electro Communications (Tokyo, Japan) in 1994, then he joined National Institute of Information and Communications Technology (Tokyo/Kyoto, Japan) as a researcher and senior researcher, where he developed “Keepon”, a therapeutic robot for autism. In 2008, he joined Miyagi University (Miyagi, Japan) as a full professor at School of Project Design, and appointed as a vice president in 2013. In 2017, he joined Tohoku University (Miyagi, Japan) as a full professor of Graduate School of Educational Informatics, and in 2018 as a full professor of Graduate School of Education.
Abstract:
Autistic children, in general, have difficulties in exchanging and sharing intention and emotion with others through nonverbal information, and experience delay in language development, especially in pragmatic use of language. In spite of these difficulties in social interactions, autistic children are relatively good at interacting with physical objects like toys. Though their interest and actions are often restricted to speciï¬c aspects, autistic children are generally good at understanding and manipulating things as physical and mechanistic systems. This implies that information processing for objects (by systemizing) and that for people (by empathizing) are quite independent, both in ontogenetic and phylogenetic meanings.
Robots can be seen as physical systems and/or as human-like social agents that have “mental states”. So, robots could provide autistic children with opportunities to experience interpersonal interactions with social agents through predictable interactions with physical systems. Based on this idea, we developed a simple robot, Keepon (Figure), which was designed to express only attention (by head orientation) and emotion (by simple body movements), so that autistic children could intuitively read its “mental states”, not being overwhelmed by complicated facial expressions, body gestures, or speech. Keepon is a simple physical system that can express a variety of social information.
For the past several years, we have been using Keepon as a mediator of social interaction with autistic children (at the age of two to five) at a day-care center for children with developmental disorders. Keepon, being tele-controlled by an operator (researcher or therapist), performed interactions with the autistic children in their daily therapeutic environment. The longitudinal interactions showed that the minimally designed robot worked well as a useful tool for therapeutic interventions. We analyzed the video data recorded from Keepon’s subjective viewpoint (of the onboard camera), and the data was offered to practitioners such as pediatricians and psychiatrists as well as the parents of the children for sharing and exchanging the understandings of each child’s developmental style.
In this presentation, we discuss the contribution of robot-mediated interaction to the research and practice of autism therapy, through examining the longitudinal observation at the day-care center. We describe in detail the interactive robot, Keepon, which enabled us to participate in the interaction with a child and record that interaction from its own perspective. Then, we describe our robot-mediated interventions at the day-care center by presenting a couple of cases of the interventions. Finally, we discuss psychological and phenomenological meanings of the robot-mediated participating observation in the children’s everyday situations.
Rosalie Elizabeth Seymour
Retired Speech and Language Therapist and Audiologist (Retd.), UK
Title: A single-case study: Exceptional response to an intensive programme of neuro-cognitive mobilisation by a boy with the diagnosis of autism spectrum disorder
Biography:
A (retired) Speech and Language Therapist and Audiologist from South Africa, Rosalie has spent most of her working career in the field of ASD and related conditions. She has travelled to many countries to study approaches that are reported by parents to be effective. She compiled a ‘desk directory’ of information entitled ‘Autism, Options Galore’, that is currently being updated for its second edition. She has developed a Whole-Person approach to Autism intervention named Neuro-Cognitive Mobilisation, which organises these approaches in a cohesive framework that makes sense of the myriad and often divergent therapy options confronting parents.
Abstract:
This study reports on the response to intervention by KW, a young boy with the diagnosis of Autistic Spectrum Disorder. Between 2016 at the age of 5 years and 2019 at the age of 8 years, KW received a variety of intensive neuro-biological, physical, educational and therapeutic interventions. These were selectively applied within a structured, cohesive, yet individualised framework named Neuro-Cognitive Mobilisation (NCM). In this period he progressed from being non-verbal, un-focused and remote to becoming a communicator, speaking two languages, and inclusion in a regular school with some support. This presentation will demonstrate KW’s progress in intervention during this period until the present day, and will use video samples, pictures, graphs and programme outlines to illustrate this report. His developmental journey will be discussed with reference to the the rationale of NCM, and the manner in which this framework assists in the timing and application of various interventions. Various evaluation tools were used which will also be demonstrated, e.g. the Autism Treatment Evaluation Checklist, The Aberrant Behaviour Checklist, various language assessments, and a specially-compiled Communication Tracking Tool, to chart KW’s progress and stages of development. Some remaining challenges will be discussed.
Amie D. Bowman
Indiana Wesleyan University, USA
Title: A time for exceptional leadership: successfully integrating adults with autism spectrum disorders in the workplace
Biography:
Ms. Bowman is working on her Ph.D in Organizational Leadership from Indiana Wesleyan University and holds a graduate certificate in Strategic Futures from the University of Houston. Her research focus is on the intersection of leadership, society, and change. Ms. Bowman is the mother of three sons, including an 18-year-old with low functioning Autism.
Abstract:
Our societies, already struggling with political complexities of employment, financial crisis, and migration issues, in the next decade will have to confront another challenge: how to employ and care for the wave of individuals with Autism Spectrum Disorders (ASD) about to enter adulthood. According to Autism Speaks’ 2017 report on Autism and Health, in the US alone 500,000 individuals with ASD will enter the workforce by 2027. Multiple studies have reviewed the experiences of individuals with ASD, coworkers, and family members to try and improve employment outcomes by identifying individual factors associated with successful transition to work, and research demonstrates that job activities that encourage and support independence reduce ASD symptoms and increase daily living skills in adults. However, most organizations, leaders, and organizational cultures are ill-prepared to integrate the coming influx of individuals with ASD into the workplace. Most organizational cultures and authority figures rely on social and communication skills to manage and lead teams, skills that individuals with ASD struggle to master. Compounding this issue, most leadership training programs and academic research into successful leadership practices emphasize relationship and communication skills as the primary skills of leadership, perpetuating the challenge for individuals with ASD. As the coming wave of individuals with ASD enter adulthood it will become increasingly important for leaders in communities, companies, governments, and organizations to understand and appreciate the differences in leading individuals with ASD versus their neurotypical peers. This presentation will discuss the challenges inherent in managing and leading individuals with ASD and provide ideas for training, resources, and areas of future research for successfully integrating individuals with ASD into the workplace.
Yemi Ogunfeitimi
Esteem Home Health, USA
Title: Supporting Autism and challenges of raising a child with Autism
Biography:
Yemi Ogunfeitimi started her Nursing education in San Antonio College, San Antonio, Texas . She received her master’s degree in Public health from Grand Canyon University in Phoenix , Arizona. She is a business owner in healthcare services that provides services to adults /elderly with disabilities in San Antonio, Texas, prior to this, she has worked as a neurology nurse, infectious diseases nurse, psychiatry nurse, case manager and also worked with special needs children in their homes. She is an advocate for children with special needs and also a speaker in health-related issues. Yemi Ogunfeitimi is a mother of four ,youngest is diagnosed with Autism.
Abstract:
When my son was diagnosed with Autism, my world fell apart, thought I could not do anything than focus on him, felt like dropping everything to take care of him, had many thoughts only focusing on my son alone, not sure what to do and how to move on, the path to the future looked so dark and I needed light to pass through this path. I was confused with my two cultures, My American culture and my African heritage, not sure of acceptance and support on both sides. In my state of confusion, I developed some strategies on how to cope with my son's Autism, raising my three older kids, run my business and develop myself more through education and training. I learned how to manage my time well, received more education to help my business and my son, focused on my three older kid's education, volunteered to help others. Instead of losing strength, I gained strength, I was determined to make all my children successful, was never tired. Whenever Autism comes to my mind, I would jump with the strength of looking for ways to succeed and how to beat Autism. Today, my son is thirteen, verbal and independent, doing better than expected and my other children are young successful adults, my business is also doing well.
Carol Amat Forcadell
Consorci Sanitari del Maresme, Spain
Title: Difficulties in diagnosing ASD in girls and maintaining that diagnosis in adulthood services of Spanish mental health: A case study
Biography:
Carol Amat Forcadell studied psychology at the Ramon Llull University (1998 – 2003). She completed a Master in Child psychopathology in Autonoma University of Barcelona. She spent 14 years working at the Associació Asperger Catalunya diagnosing children and adults, making psychological interventions with children and adults with ASD (individual and social skills groups). She currently works in a Child Mental Health service in Mataró diagnosing ASD, visiting children with ASD and their families and making social skills groups.
Abstract:
ASD has a huge variability, so may be difficult make a good diagnosis, more over in female cases because it has been demonstrated that traits of ASD in girls are less obvious than those in males because of their camouflage and compensation strategies. This is an example of the peripli of a family to get a diagnosis of ASD since first worries and what happens when the child becomes an adult. First contact with public mental health services was at 9 years old for ADHD symptoms. The conclusion at that moment was SLD. At 13 years old a private therapist diagnosed ADHD and she began medical treatment. Next contact with public mental health services was at 16 years old for anorexic symptoms. Initially, the diagnosis was Anorexia Nervosa and Depressive Disorder but, during the treatment, therapists observed certain difficulties in relationships similar to ASD symptoms (first motivation for changing her looks was making friends, executive function difficulties, resistance to change, literal understanding of language, misunderstanding of social situations, some strange rituals..). Therefore, deeper investigations were commenced including a history of social and communication development, repetitive behaviours, ASD screening, ADOS-2 and ToM evaluation. Finally, ASD and Depressive Disorder combined with ADHD was diagnosed at 17 years old. When she started in adult services, the diagnosis was changed for Adaptative disorder.
Biography:
Feliciea Jibson is Founder of Felser Limited, Registered office in England: 11571455. 8 Becqurel Court, West Parkside, London, SE10 0QQ. She is member of Society of Education Consultants UK, qualified Teacher with years of experience in teaching autistic children in schools, residential settings, and working directly with parents, carers and families. She has has completed her Masters degree in Autism at University of Birmingham. Before opening Felser Limited in 2018 Feliciea worked for 4 years as a Head of School for learners of 16 to 25 years old with severe learning difficulties and complex needs. The concept of PAGS® was initiated by herself, and is now a continued collaboration with a group of professionals, pooling a wealth of experience.
Abstract:
Profile, Assessment and Goal Setting (PAGS®): PAGS® assesses the skills individuals need in order to be able to navigate their way through education, work and life. These skills underpin academic learning and without them, individuals struggle in the classroom, making the attainment of qualifications unnecessarily out of reach of many of our students. PAGS® supports users to develop these necessary skills in individuals. Learners may not show a developmental pattern in the acquisition of skills therefore significant gaps in the attainment of the individual can be missed, assuming that a certain level of performance was automatically credited from early skills. PAGS® is developed to work alongside any academic curriculum. PAGS® ® has been trialled in schools and colleges, specialist school for children with autism and also with selected individuals. The PAGS® questionnaires were completed by a teacher or by an adult who is familiar with the learner or by the learner. The results from the questionnaires were collated and provided in the form of a table, showing the strengths of the individual as well as their developmental needs. In doing this, the table shows areas that the learner would benefit from targeting in a developmental order. It has been developed to assist teachers in producing coherent, well-documented strategies and plans that consider the developmental stage of the learners. Expected outcome: We expect learners will increase their overall score (four areas) with 10-15% in 12 months trial, depending on diagnosis and additional learning difficulties or/medical conditions.We are following the learners enrolled on the trial for this academic year 2019-2020. We will measure social progress made by the individual. We will use Vineland scale- adaptive behaviour scale to measure the level of social adaptive functioning. Early detection of skills deficit enables a more rapid response to identified issues, through personalized and effective interventions, empowers stakeholders to develop functional skills, facilitates changes in social behaviours and academic learning that lead to better outcomes in life. PAGS® incorporates different therapies, cognitive development and learning theories binding them all together for the benefit of stakeholders. It can be used as self-assessment, and others (parent assessment, teacher's assessment and by different professionals). It can be used in any school and organizations.
Biography:
As practicing educational Psychologist in South Africa, Dr. Beulah van der Westhuizen has dedicated her career to finding solutions to better assist neuro-diverse individuals and specifically those on the ASD Spectrum. She has founded EduExcellence, a private remedial school providing personalised education, with a remedial stream and a special needs stream (national footprint). She has designed and coined TheraEd™, the concept being implemented within this bespoke school system. The design of the iMap™ and iDevelop™ is her latest contribution to the field and forms part of a greater vision to educate parents, teachers and professionals in the underlying root cause aspects underpinning the symptoms observed. This vision is to form a clinical collective view on the individual, enabling practitioners to work together to the betterment of the person in need.
Abstract:
This study reports on a practical protocol for clinical information gathering, which comprise of three specially designed and consolidated questionnaires (based on best practice 360° view), a combined computer generated report and the iMap™ to plot the results in order to create an opportunity to educate parents and teachers in matters concerning the underlying aspects associated with the symptoms observed. Additionally, the protocol allows for quick conversion of information across a multidisciplinary field of practitioners and clinicians with either the “at a glance” view (iMap™), or the comprehensive report generated. The underpinning research is based on neuro-cognition, neuro-development, educational psychology, nutrition, biocemistry, speech and language components, audition, sensory-integration theory, EEG neuro-feedback, developmental optometry and movement. With it’s aim to assist the parctitioner (multidisciplinary), the application is not limited to any specific field, but rather to bring the fields together and create a global protocol / system in which to understand all the underlying components contributing to how symptoms present themselves and to be able to create a structured, cohesive and highly individualised programme. A single, short case study will demonstrate the practial implication of this protocol and the multidisciplinary application.
Javier Pita de la Vega Garcia
Consorci Sanitari del Maresme, Spain
Title: Proposed intervention program for 1 year of patients diagnosed with high-performance ASD in Consorci Sanitari del Maresme (Catalonia, Spain).
Biography:
Javier Pita de la Vega Garcia has studied Nursing at the University of Valencia (2010-2014). He completed the mental health specialty at Consorci Sanitari del Maresme (2015-2017). ADOS-2 certificate in 2018. He currently works in a child mental health center and partial income unit in Mataró (Spain), where he makes individual visits and psychotherapy groups.
Abstract:
The chronicity of ASD and the variety in the symptomatology of the diagnosed patient (from childhood to adulthood) are two of the most relevant factors in ensuring professional health care. In many cases, the intervention from the consultation is not enough to solve the difficulties or improve the adaptability to the environment, so it is evident the need to develop an intervention plan based on the evidence. The objective is to develop an intervention circuit according to age in patients diagnosed with high-performance ASD. Prior to the intervention, the assessment and diagnosis process will be carried out in accordance with the internal protocol (clinical interview and screening: Mercedes Belinchon questionnaire, SCQ, CAST, AQ ...; cognitive ability assessment, ADOS-2, ADI-R , assessment of theory of mind and observation in school). The age of the patients treated at the Child and Youth Mental Health Center is 5 to 18 years. After diagnosis, a psychoeducational group of the disorder is performed with the parents (2 months). a) If the patient diagnosed with ASD is between 6 and 11 years old, a group using Lego (3 months, 18 sessions) and Superflex (3 months 18 sessions) are proposed. b) If the patient is between 12 and 18 years old, PEERS (16 weeks) and small groups are proposed: anxiety, emotions, interests, activation ... (3 months). During the intervention program, individual visits are made in consultation and community. In addition, if you need other specific programs such as: food selectivity or management of new technologies.